Comments for me and my pemphie

Comment on 3 June 2007 by Alexandra

Alexandra — Fri, 30 May 2008 08:52:53 +0000

Oh my goodness - thanks so much for revealing all of that stuff about the Oracle. I almost died last night when he was correctly guessing everything about me, and actually couldn’t sleep for wondering at how he did it.

He evidently does have a fantastic memory and excellent showmanship.

I must say though, that box suspended from the ceiling didn’t move once, so that last trick really was quite a marvel.

And how does the levitating table work? I did wonder whether it had been magnetised, and that perhaps the controlling magnet was somewhere in the ceiling.

Either way, he’s pretty incredible.

Comment on by Wyrd\'s little sister

Wyrd\'s little sister — Fri, 11 Jan 2008 22:31:08 +0000

If anything, that reminds me of how many things there are still to do. Good, in a way. Shame they aren’t easier to get to.

Comment on 101 things to do in 1001 days by marykaylady

marykaylady — Thu, 03 Jan 2008 15:42:27 +0000

I have my list too! At first I didn’t think I could think of 101 things and now I want to add things. Good luck. I hope writing your goals down make it more real.

Comment on 9 June 2007 by 14 September 2007 « me and my pemphie

14 September 2007 « me and my pemphie — Fri, 14 Sep 2007 19:12:15 +0000

[...] was prompted to post today after receiving a comment from Lloyd from Nappies Direct about their Naty products. He has kindly pointed out that they [...]

Comment on 9 June 2007 by Lloyd Hawken

Lloyd Hawken — Wed, 12 Sep 2007 14:03:47 +0000

Stumbled upon your site and was really pleased to see a mention of our business. We sell the whole range of Naty products now including the new toiletries, also we have a new site dedicted to Naty, http://www.naturalised.co.uk

once again many thanks

lloyd

Comment on 28 June 2007 by 10 Ways To Be A Body Positivity Advocate «

10 Ways To Be A Body Positivity Advocate « — Fri, 03 Aug 2007 22:17:09 +0000

[...] Bring body positivity and size acceptance issues into your communities. Science fiction, LGBT, yoga. Whatever you can think [...]

Comment on 28 June 2007 by Big Fat Deal » 10 Ways To Be A Body Positivity Advocate

Big Fat Deal » 10 Ways To Be A Body Positivity Advocate — Tue, 17 Jul 2007 23:34:54 +0000

[...] Bring body positivity and size acceptance issues into your communities. Science fiction, LGBT, yoga. Whatever you can think [...]

Comment on About by Tracy

Tracy — Sun, 08 Jul 2007 18:34:26 +0000

It appeared in February 2006, startd with flaking on the side of my nose,then progressed to blisters on my head, chest, back and armpits, I had about 60 in total. I wasn’t actually diagnosed with PF until May/ 06. Started Prednisone (40 mg) in June, decreased to 30 then 25..20..15..10 strted the cellcept in October at 2000mg,I was at 25 mg prednisone at the time. All the pemphigus cleared up within a month or 2 of starting the Prednisone but I was at 40 and 30 mg. Prednisone was so nasty though, I gained lots of weight and my face loked like a cabbage patch doll.

Comment on About by blogarian

blogarian — Sun, 08 Jul 2007 18:06:45 +0000

Your doctor sounds wonderful - I wish mine were half as helpful!

I think that what your doctor said about our strong immune systems sounds absolutely right. I managed to avoid all the usual childhood illnesses, and I had psoriasis (another sign over an over-active immune system).

I’m currently on 15mg Pred and 2g Cellcept. I’ve been on both drugs since September - I started on the Cellcept about a week after starting on the Prednisolone. I keep getting flare ups, so can’t get the Pred any lower (yet!).

By the way, have you had PF for long?

Comment on About by Tracy

Tracy — Sun, 08 Jul 2007 13:24:14 +0000

Hi,

I was a member when first diagnosed but didn’t like it..too many opinions. I am lucky enought to have the most wonderful Doctor who I email in between visits she promptly answers all my silly questions. She is the only person in all of Canada who specializes in the disease, she’s only a two hours from me. I asked about the chicken pox as my Dr. mentioned to me that many people with pemphigus actually didn’t have or get chicken pox at a late age.It’s our incredibly strong immune system that overly protects us from something that 95% of the population contracts befor ethe age of 10. Me, I was 30!. It’s this same overly protective system that is a pain now, I can’t seem to shake PF. Although, all my lesions dissapeared very quickly after starting Prednisone( 1 and a half months) then I started cellcept( have you heard of it yet? It’s the pemphigus wonderdrug as it’s steroid sparing… no icky side effects). Unfortunately, i decided to stop the cellcept thinking it was gone…. not…. so now I’m using Clobatesol cream and perhaps might start the cell cept again.

Tracy