me and my pemphie

living naturally with pemphigus

February 28, 2009

Filed under: Uncategorized — blogarian @ 5:56 pm

I’ve had a crappy few months.  I’m out of a job at the end of March because the Council can’t count/doesn’t like books/needs to buy lots of Blackberries (or something like that), my Gran died, my Gran stuck the boot in to my mother one final time by cutting her out of her will, my pemphie is creeping back, money is tight, I’m depressed … blah.

I’m going to have yet another consultant.  I’d managed to see the same doctor more than once (!!!), but clearly the hospital realised their mistake and have sent him off to do something else.  There seems to be no hope for consistency of care with NHS Grampian.

My pemphie flaring up may be in part my fault.  I have stopped taking my Dapsone.  It was making my heart ‘fluttery’ and it was scaring me.  So now bits of me are falling off, but my heart feels normal.

Work at the library has been okay.  I started at the beginning of December.  The borrowers tend to be either very nice or rather rude, there’s not much in between.  Also, it has made me even more sure that branch libraries benefit enormously from having senior library assistants or librarians who are very involved in the branch.

 

Leave a Reply