I’ve been on Dapsone (along with Pred) for several weeks now, and it really isn’t working for me. Plus I’m feeling even more tired and ‘blah’ than normal. I’ve also had a bit of a funny tummy, blue lips and a racing heart on the Dapsone. Not nice.
My next hospital appointment is October 16th and I’m thinking about asking if I can stop taking the Dapsone and just try reducing the Pred. If I’m getting blisters anyway, then I might be better getting blisters and be on as few drugs as possible. At least there would be somewhere to go with the meds then.
I feel so tired all the time right now. I’m quite glad that I’m not working full time at the moment. I was barely coping over the Summer – not that I would have said anything to my bosses – you just have to knuckle down and do it … then collapse when you get home.
I’m having no luck with job hunting (which is maybe just as well).
