September 9, 2008
I’ve been on Dapsone (along with Pred) for several weeks now, and it really isn’t working for me. Plus I’m feeling even more tired and ‘blah’ than normal. I’ve also had a bit of a funny tummy, blue lips and a racing heart on the Dapsone. Not nice.
My next hospital appointment is October 16th and I’m thinking about asking if I can stop taking the Dapsone and just try reducing the Pred. If I’m getting blisters anyway, then I might be better getting blisters and be on as few drugs as possible. At least there would be somewhere to go with the meds then.
I feel so tired all the time right now. I’m quite glad that I’m not working full time at the moment. I was barely coping over the Summer – not that I would have said anything to my bosses – you just have to knuckle down and do it … then collapse when you get home.
I’m having no luck with job hunting (which is maybe just as well).
