me and my pemphie

living naturally with pemphigus

April 13, 2008

Filed under: ill, immune system — blogarian @ 5:37 pm

An update …

I think I have an infection where my cannula was.  My arm hurts, is swollen and it’s a bit ‘gunky’.  I feel fairly awful.  My temperature was 38.1 this morning, and I felt sick and faint.  I also have a splitting headache which just won’t shift.  My breathing is a bit weird too.  I feel like I can’t catch my breath.  I’m getting out of breath doing nothing.

I’m working a late shift tomorrow so will have to try and get to see my GP in the morning.

I hate being ill and having a non-existent immune system!

 

April 10, 2008

I have escaped from hospital (a day early) - woo!

The prednisolone infusions seem to have gone well and without any horrible side-effects or reactions.  I had three lots of 1000mg over three days put in through a cannula.  Despite massive amounts of steroids running through my body I slept like a baby last night.  My blood sugar got up to 10.1, but the doctor was pretty impressed that it hadn’t gotten a lot higher considering everything.  My blood pressure has been perfect to slightly low (could be down to my expert use of my Dr Andrew Weil guided imagery audiobook!) .  My blood tests were all fine.

My daily dose of pred is being reduced by 5mg per week until I’m off the stuff, so tomorrow I’m down to 35mg.

I should be getting an appointment through to see my consultant in a few weeks (he didn’t make it in to see me while I was on the ward - hmm, no comment!).

While I was in hospital Mum got phone calls for me from work.  I am a preferred candidate for the summer job … so basically, as long as my references are okay and my Disclosure Scotland thing comes through okay, I have the job - hurrah.

I’m also working more hours next week, so I hope I don’t suddenly feel awful because of the treatment!

In more fun news, I’m off to see ‘And then there were none’ at the theatre on Saturday.  I have a small ‘And then there were none’ obsession, so I’m rather excited about this.

 

April 7, 2008

Filed under: books — blogarian @ 3:35 pm

Saw this at the library last week and thought it was hilarious, so I had to share.  The romance novels are always good for a bit of a laugh.

The virgin bride said "wow!"

 

101 things April 4, 2008

Filed under: 101 things — blogarian @ 5:16 pm

I want to learn sign language, well some basic sign language.  So far I’ve learned to fingerspell the alphabet (not much, I know!), but I’ve been looking for a course.  I got in contact with the Aberdeen & North East Deaf Society about courses and after a bit of a delay they got back to me with a course that costs 320 pounds, which is waaaay more than I can afford.  I don’t want a qualification or a certificate, I just want to learn.  I think I’m going to have to rely on books and dvds.

 

April 3, 2008

Filed under: consultant, job, natural living, pemphigus, prednisolone, toiletries and beauty — blogarian @ 1:12 pm

I eventually got a new dermatologist at Aberdeen Royal Infirmary’s dermatology unit.  I saw him a while back and he put my prednisolone up to 40mg.  He also suggested that I might benefit from high dose prednisolone infusions.  So, he consulted the head of dermatology in Aberdeen and he agreed.  The treatment basically consists of going into hospital and receiving very high doses of prednisolone over a period of three days.

Yesterday evening I got a phone call from the hospital saying that they had been expecting me to go in that day - first I’d heard!  Anyway, we have arranged that I will go in on Tuesday.  This is good for me because I’ve got no work for next week.

Also, I made a list of some of the links I use for my toiletries shopping:  Natural toiletries and cosmetics.

Yesterday, I had my interview for the summer job at the libraries.  As usual I said lots of inappropriate things - what is wrong with me?!?  I open my mouth and rubbish just spews out.  I’m still hopeful about getting the job though.